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All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


NEW SURVIVAL MILESTONE FOR CYSTIC FIBROSIS IS CAUSE FOR CELEBRATION BUT NOT INACTION
February 27, 2024

Data from Canadian Cystic Fibrosis Registry 2022 Annual Data Report  suggest that today’s babies with cystic fibrosis could live longer than ever before;  fatal disease requires further action to change prognosis. 

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Driven Brands Collision Group Celebrates $5 Million Milestone in Cystic Fibrosis Fundraising
January 24, 2024

The Driven Brands collision group announced its monumental North American milestone of raising over $5 million for cystic fibrosis research, care, and advocacy.

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CYSTIC FIBROSIS CANADA CALLS ON PROVINCES AND TERRITORIES TO IMMEDIATELY EXPAND FUNDING OF TRIKAFTA FOR 2-5 YEAR OLDS
December 18, 2023

Provinces and territories have begun funding for younger age group following positive recommendation from CADTH. 

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CYSTIC FIBROSIS CANADA ASKS CANADIANS TO MAKE ONE DAY NOW THIS HOLIDAY SEASON.
November 28, 2023

Cystic Fibrosis Canada celebrated Giving Tuesday with the launch of its annual holiday fundraising campaignOne Day, Now. 

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HEALTH CANADA APPROVES TRANSFORMATIONAL CYSTIC FIBROSIS DRUG TRIKAFTA FOR CHILDREN AGED TWO TO FIVE
October 17, 2023

Cystic Fibrosis Canada calls on jurisdictions to fund the drug immediately for all who can benefit, and eliminate deductibles around access 

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Cystic Fibrosis Canada Awards $250,000 in Annual Seed Grants for innovative new research projects
October 12, 2023

Toronto, OntarioCystic Fibrosis Canada has awarded $250,000 in seed grants to five researchers to encourage new and innovative research projects in support of the organization’s pledge to go further in fueling targeted, world-class cystic fibrosis (CF) research 

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CYSTIC FIBROSIS CANADA CELEBRATES 25 YEARS OF PARTNERSHIP WITH CARSTAR
July 28, 2023

Last week at CARSTAR’s annual Evolution Conference in Montreal, Quebec, Cystic Fibrosis Canada and the collision and glass service organization celebrated the milestone of 25 years of partnership.

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CANADA CONTRIBUTES TO THE GLOBAL CF CONVERSATION: GENETIC THERAPIES, THE CHANGING CF LANDSCAPE, AND EQUITY ISSUES DRIVE AGENDA AT THE EUROPEAN CF SOCIETY CONFERENCE
July 7, 2023

Cystic Fibrosis Canada’s Chief Scientific Officer, Dr. Paul Eckford, recently attended the European CF Society’s annual conference where important advances in research and clinical care were shared.   

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Cystic Fibrosis Canada publishes recommendations for the follow-up of pregnancies and newborns of mothers who are receiving cystic fibrosis modulator therapies
June 28, 2023

Cystic Fibrosis Canada’s Healthcare Advisory Council has published recommendations for the follow-up of pregnancies and newborns of mothers who are receiving cystic fibrosis transmembrane conductance regulator (CFTR) modulators, like Trikafta 

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Cystic Fibrosis Canada announces nearly $2.7M in new research funding
June 8, 2023

Cystic Fibrosis Canada has awarded nearly $2.7M in research funding to projects that support the organizations new approach to research funding, aimed at improving health outcomes for people living with cystic fibrosis (CF).

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